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Rank: Member
Groups: Registered
Joined: 4/24/2010
Posts: 12
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My name is Shahida. I am 59 years old, suffering with Rheumatoid Arthritis for the last 11 years. I have been on many different drugs but none of them have worked for me. At the moment I am on Rituximab with Prednisolone but still not seeing much joy. I would like to hear from people with similar problems or pains I am going through. Any advice would be much appreciated.... 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Shahida,
Welcome to the forum but sorry you have RA.
You'll get lots of friendly support and advice on here and most of your questions will be answered.
On here we all know exactly what you are going through.
I'm 60 and have had RA for 9 years, I am now on mtx and humira.
Looking forward to getting to know you.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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Hi Sheena
Sorry you're having such a rough time with RA, but glad you found the forum.
Can't really offer any advice except to say that, hopefully, you see your rheumy regularly and that he or she soon comes up with a drug cocktail that will help you.
Anthea
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Sheena I am new to the site just this week - Welcome. I am 56 yrs old and diagnosed 18 months ago but have not settled on correct medication as yet . On depo's at mo waiting for my BP to reduce before trying leflu. Have been on metho and and also sulph. Will enjoy speaking with you.  Rose
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Hello Shahida
Nice to meet you but so sorry that you have RA which is not under control.. I am sure that others will be able to help you with this . I look forward to chatting with you.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hello Shahida, and a very warm welcome to the forum. I`m 59 too - 60 in December! I`m sorry you are having such a tough time with the RA, and hope the rituximab will kick in and help you. I was diagnosed in 2006, and am currently on humira, after trying and failing on various DMARDs. Take care, & keep posting, Kathleen x
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Rank: Member
Groups: Registered
Joined: 4/24/2010
Posts: 12
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hi everyone thank u all for welcoming me to the forum.i can sure use some friendly people around. Such a rough journey when one is having a flare up. oh boy! I can hardly type as my fingers have gone out of shape.......and to think i was a shorthand typist.....i think more than advice you just need to be in communication with people who are in the same or similar boat as yourself......I feel better already talking to you all...thankyou
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 585
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Hi Sheena
wecome to the forum but I am sorry you have RA
my name is Mary I am 49 and have had RA for 14 years sadly I developed MS 3 years ago
I am on the same drugs as you are it sometimes takes a while for the RTX to kick in how long ago did you have the infusion??
I know there are a few people on here who also are on RTX and some of them had to have 2 infusions sorry I cant remember who it is
hope you have help soon
look forward to getting to know you better
take care
Mary L
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Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
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Hi Shahida, WELCOME, its great that you've joined the forum.
I'm Sheila, 56 years young, though like all who have RA there are days when I feel as if I'm 90. I've had RA for just over two years, but have found out so much more about it through the forum.
I had my first two infusions of Rituximab two weeks apart in late February early March. I'm not sure if its working yet, maybe a little as I'm definitely better than I was in January and February, but then they say give it at least three months and at the hospital yesterday they said it sometimes takes longer to take effect. So I've still got my fingers crossed that it will work. I also take prednisolone and am down to 10mg a day now but am finding it hard to get any lower. Can I ask when you had your Rituximab infusion? One thing I have noticed is that since starting Rituximab is that my hot flushes have returned and I hadn't had any of these since the RA started, I've no idea what thats about and forgot to ask at the appointment.
Looking forward to hearing more from you and hoping that your fingers become less sore.
Best wishes
Sheila
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Shahida,
Welcome to the forum, I'm Lorna I have had RA for almost 3 years now, I am married for 28 years and have 3 daughters. Hope you get sorted out soon with pain relief, there is nothing worse than feeling that bad and not knowing when it will stop. Thinking about you, take care. Lorna x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 216
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Welcome to the forum, Shahida, hope your team get you sorted out very soon so you're more comfortable. L xx Always be aware that what you do might hurt others........and if it could, do nothing without careful consideration of the consequences
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Rank: Advanced Member
Groups: Registered
Joined: 3/24/2010
Posts: 102
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Welcome Shahida. I'm Beth - married 31years, 2 children, uncontrollable garden, diagnosed 2008 but had symptoms since 2003........... Goodness I feel like that out take of the News at 10 man who was 'married, 2 children, big mortgage,London, tired, wet, p***d off etc etc' Hope someone else knows what I'm talking about or everyone will think I've lost it!!!!!!!  I know you'll get lots of help/advice on here, there will always be someone who's been in the same situation - who can help. Take care Beth
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Hello Shahida
Welcome to the forum but I am so sorry that you have been suffering from the dreaded RA for so long. I am relatively new to this disease, just over 12 months since diagnosis, and have had a great deal of advice, comfort and support from this forum.
I hope you manage to get your RA under control very soon.
Jackie
xx
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Rank: Member
Groups: Registered
Joined: 4/24/2010
Posts: 12
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hi everyone.thanks for all your reply. I thought I was rambling on and on by myself. I was in Holland for the last 2 weeks.Returned on wednesday. One week later than expected due to the volcano. For the whole two weeks I was so poorly with the flare up. First week was not so bad but the second week was full hell. Stayed indoor during that week in my nephew`s flat in Amsterdam...The dutch people are so friendly, one of the neighbour gave me her wheelchair to use while I was there. The last day I ended up in hospital.......boy oh boy I will never ever say a word against the NHS....,,,,,,,,I was there for 6 hrs in emergency and got nowhere. But seven different types of doctors came and went saying they will send their superior. At the end the superior rheumatologist came from out of town at 11pm. She said to increase the steroid to 20mg......why did I not think! But hey I would not have met all those doctors..Every doctor and nurse that sees the patient have to shake the patients hand and ask for coffee or drink.they are so friendly that I just could not be angry with them for making me wait.....as soon as I came
out of hospital the flights were opened.......I hobbled along to the airport got the first flight out..........Why I am sharing my lifetime story with you kind people is because I am so high on steroid and my mind is working overtime and cannot go to sleep...I bet you people must be bored with all my garbage....TOUGH!! Forgive if I sound rough and rude I am really a gentle person
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Shahida,
Welcome to the forum.
You certainly sound like you've had an incredible adventure in Amsterdam! I bet you're awfully glad to be home again.
I'm also on Rituximab so I look forward to getting to know you better and sharing experiences.
Joanna
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Shahida Welcome to the forum you gadabout! Sorry to hear of your experiences in Amsterdam but at least you are now back on home soil  I am Lyn, married to Mike, we have four children and live in Thornton Cleveleys, Lancashire. I have had RA (seronegative) for 22 years and run the gamut of medication and a fair few surgical procedures along the way! I'm currently on Enbrel, Methotrexate, Prednisolone and Naproxen plus added bits to keep things ticking. Look forward to getting to know you better but in the meantime hope the flare settles quickly with the increased steroids. Lyn x
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Rank: Member
Groups: Registered
Joined: 1/21/2010
Posts: 22
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Hello Shahida
First of all what a lovely name you have.
A warm welcome to the forum. Sorry to hear about your stay in Amsterdam. You will
find that we are a great bunch of friends here and will always try to give help and
advice when we can.
I am 66 years young, married with two daughters and two beautiful grnaddaughters, who
live in Spain. I have had RA for over 25 years. Have had many different medication but
have found enbrel the best so far. Very few flare ups. Also I have had numerous operations over the years.
I hope that your rhemy team will soon find the best meds. for you.
Take care
Marlene
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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welcome
I do hope that the RTX works out for you, a big flair after the first set of infusions is pretty common. it takes about 16 wks to really get going.
several people I know find the second lot of doses of RTX worked better than the first and are really very well.
I hope this works out for you.
I am Jenni. 34 with 3 children a hubby and a cat. RA (severe disease) for 14 yrs now.
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Shahida, welcome from me too!! better late than never!! I am Barbara, married to Roy and 3 grown up kids, and 1 who is almlost 17. I work full time still with babies, as a childminder. I was only diagnosed last July 2009, and still searching for the right meds. Now diagnosed with fibromyalgia too. Sounds like you had a big adventure in Holland!! Glad you got home safely. Everyone here is so lovely!! You will get lots of support and advice, good luck with the rxt, take care x BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Shahida and welcome to the Forum. I'm sorry that you have RA. We don't mind if you tell us your troubles it's good to get it off your chest and we all know how rotten it makes us feel so we all understand. I hope that you can get some improvement soon. Glenys, from Nottingham.
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